ExecutiveDirector

Salary: The position is compensated with a base salary that will be commensurate with the candidate's experience however the salary range for this position is between $130-150K annually plus benefits and paid time off as well as performance based bonus. Location: Remote; preferably based in greater NYC metro/Tri-state area to facilitate regular in-person meetings. Some travel as necessary. About Project 8p Foundation:Project 8p Foundation is a nonprofit biotech organization established in late 2018 to research a category of chromosomal disorders affecting the 8th chromosome. 8p disorders are extremely rare, the impact is dramatically negative, and there is no cure or standard course of treatment. Project 8p is patient-led and takes a collaborative open science approach to research, with a commitment to develop research threads that can be used to develop treatments for 8p disorders and for other complex neurological chromosome diseases. The Role: We seek a creative fundraising Executive Director with at least 10 years of work experience to advance medical and science-based initiatives to target, qualify, engage and, with the Board Chair, directly solicit individual, institutional donors and venture philanthropy solutions. In the process, the Executive Director will collaborate with the CEO to engage new Board members and to develop a range of funding and research partnerships. Reporting directly to the CEO, this position will have both internal and external facing responsibilities. Success will be primarily measured by the ability to grow the fundraising program. Responsibilities:In addition to the onboarding materials provided you will be expected to take personal initiative to understand chromosome 8p disorders at a layperson’s level, as well as the current strategic and operating plan of the organization. This individual should have an aptitude and interest in healthcare, scientific research, and medicine to learn quickly and be resourceful in their own networks. You will be responsible for a fundraising target of $2.0 M in the first 12 months leveraging our existing pipeline and expanding with new funders. Leadership and Strategic Planning:Partner with the CEO to provide strategic leadership to the organization. Maintain overall responsibility, accountability, and authority for the management of day-to-day operations for Project 8p and its programming with the support of staff and the Science Director. Develop and implement strategic plans to achieve Project 8p's mission and goals. Foster a positive and collaborative organizational culture. Fundraising, Financial Management and Venture Philanthropy: Develop new and execute fundraising strategies to secure financial support for the organization. Manage the organization's budget and financial resources effectivelySeek and cultivate relationships with donors of all designations including but not limited to individuals, major donors, foundations, and corporations. Structure creative in-kind partnerships or with equity to advance programs (I.e. venture philanthropy that includes high engagement, multi-year support and capacity building). Experience or willingness to learn and work with crypto donor modelsOversee and leverage social media interactions with new or existing donorsAdvocacy and Public Relations:Advocate for the 8p community at local, national, and international levels. Build and maintain positive relationships with key stakeholders, including government agencies, patient groups, and healthcare organizations. Manage public relations, social media and communications to enhance the organization's visibility and impact. Organizational Development:Recruit, lead, and develop a high-performing team. Implement effective human resources policies and procedures. Continuously assess and improve organizational effectiveness. Board Relations and Governance: Work closely with the Board of Directors to align organizational strategy with their vision and goals. Provide regular updates to the Board and engage them in key decision-making processes. Ensure compliance with legal and ethical standards. Community Engagement and Education:Engage with the 8p community to understand their needs and concerns. Develop and implement educational initiatives to raise awareness about 8p. Facilitate support groups and events to connect individuals affected by 8p. Professional Experience: Skills:

Self-starter with a proven ability to work independently with minimal oversight while also being a collaborative teammate Strong work ethic with an understanding of grassroots organizationsTakes initiative in bringing new out of the box ideas for finding and cultivating new donorsWillingness to transform cold introductions to warm relationships by phone, Zoom and other toolsSuperior interpersonal skills including interfacing and engaging diverse volunteer and donor groups as well as collaborating with and motivating board membersStrong project management and organizational skills including planning, program development and task facilitationTransparent and high integrity work style; takes personal responsibility and accountability for work and meets deadlines

Requirements

Demonstrated aptitude and interest in healthcare, scientific research, and medicine to learn quickly and be resourceful in this field. Rare diseases experience a plus. Highly motivated to work independently and make an impact for a new disease-specific patient-centric foundation. Demonstrated track record of successful fundraising individual donor cultivation, major donors, special events, corporate/foundation giving, and stewardship. Collaborative with a strong ability to project manage and get things done autonomously and with a team in an expeditious mannerExcellent and persuasive written and verbal communication skillsAbility to work in a hybrid model with the expectation to be in NYC several days a monthProficiency in Google and Microsoft suite of tools and project management softwareCreativity and personal dynamism Application Requirements:

Cover letterPlease explain what is compelling to work on a complex rare disease and why you are interested in this position. Please summarize how you meet the skills and requirements for this position. Please provide a writing sample of a grant applicationResume/CV Please email to Nancy Dominguez - nancy@project8p.org While we are a young organization looking to grow rapidly, we strongly encourage all candidates to apply that may fit some criteria, if not all. Project 8p is an Equal Opportunity Employer. We respect and seek to empower each individual and support the diverse cultures, perspectives, skills and experiences within our workforce.